M.E Recovery: Subjects coming up

Wednesday 12 June 2013

Subjects coming up

Let me know what you want to hear about...

Gupta Amygdala retraining - is it worth trying? I tell you my experiences

My partner had M.E for 16 years, now she's 100%, but my aunt made a full recovery after two years - how?

Pacing - how do you do it effectively?

Hydrotherapy - what is it? How to do it? And what a big difference it makes?

Does diet make any difference?

Orthostatic intolerance - never heard of it? Up to 80% of us are affected by it!

Are you and us and them-er?

What does the success of the cancer drug indicate about M.E?

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Six Things I Wish I'd Done at the beginning!

1. STOP - if you haven't ground to a halt of your own accord then stop now. If are limping on and keep pushing at it so you yoyo up and down STOP. STOP & rest and find a proper schedule, learn to PACE, get other people to do as much as possible!

2. Not been frightened - I spent the first 6 months pretty terrified while I identified what on earth was my body doing now, thought about what if it were something fatal and believed all the M.E stuff that you mustn't move, that there is good reason to be frightened. This pushed my brain into further fight or flight mode. I now know I am not going to die of M.E. I am not going to damage my body if I do too much. The fear is more damaging than anything, but of course this isn't to say you or I can just push through it. That sadly, is simply not possible, but being terrified all the time that one is damaging oneself is the opposite extreme from pushing at it. As my aunt showed, from even a bed bound place one has to try to slowly build in movement else the body just gets iller.

3. Learn to PACE properly- I think this is the hardest thing to do and I have only learnt properly with the help of a SA physio who helped my aunt make a full recovery. I will be doing a detailed post.

4. Use meditation to both help your body/mind heal and to assist you in learning to cope with what is undoubtedly one of the most mentally challenging thing you will ever experience. And I put it top of my life above childhood trauma, infertility & miscarriage and near death illness. www.getsomeheadspace.com is brilliant and you can start with 10 mins a day for free.

5. Use water therapy. It sounds like hard work, it sounds counter intuitive and just another graded exercise. IT IS NOT. I will be posting about how to do this properly and the difference it makes!

6. Read Faces of CFS if you can get a copy to make you understand the facets of the illness and help you feel less insane. And Painful Yarns by Lorimer Moseley - available on Lulu.com to give insight into how the brain might be working against you!